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Get your Free Caregiver’s Handbook


The eBook is free when you sign up for our quarterly consumer newsletter.

Palliative Care Caregivers Handbook This 35-page booklet is designed to give the caregiver or one relying on others for care, guidance in organizing and simplifying your unique situation.

Topics include caregiving, legal and financial concerns such as advance care planning, health issues, and palliative care.

Here are some of the topics covered in the free Caregiver’s Handbook:

Section 1: About Caregiving – This section includes a:

  • Discussion of who are the caregivers, the receivers, and who else is in the same boat
  • Checklist of personal-information documents
  • Place to create a list of "who knows where it is located if you need it"

Section 2: Caregiving Services to Help You – Topics include:

  • Top 5 Caregiving Tips
  • An overview of Respite, Support Groups, Case Management, In-Home Care, Placement, Assessment and Consultation, and Protection Through Technology
  • Checklists that cover personal safety and healthcare decisions

Section 3: Legal/Financial Concerns and Resources – This section includes information about:

  • Legal Issues and documents
  • General checklists
  • Definitions (laws very from state to state)
  • Public benefits that consumers may be eligible for including websites and phone numbers for specific answers to questions

Section 4: Health Care Issues - This section includes:

  • Tips for talking to doctors
  • Guidance for medication management
  • A fall-prevention checklist
  • Other personal information charts.

Section 5: Self-Care – This section includes reminders for how caregivers can better take care of themselves while caring for others.

Section 6: End of Life – This section gives a clear definition of hospice along with guidance as to when hospice should be called and who pays for it.

About Palliative Caregiving

Palliative Caregiving Services

Palliative Care Legal/Financial

Palliative Care Health Care Issues

Palliative Care Self Care

Palliative Care End of Life


Throughout the eBook there is also information on the CSU Institute for Palliative Care and what palliative care does to help reduce suffering. “Palliative care is often confused with hospice,” said Carline Boaz, Associate Director at the Institute.

“What palliative care does is simply improve the quality of life for patients and families facing serious or chronic illness — whatever the diagnosis or prognosis. It prevents and relieves suffering by addressing pain as well as the physical, emotional, psycho-social and spiritual problems associated with serious and chronic conditions.”

Helen McNeal, Executive Director of CSU Institute for Palliative Care stated:

“As families engage in conversations about healthcare decision making, they will find it’s much easier to have a document like the Caregiver’s Handbook eBook to guide them through all of the important topics without letting discomfort sidetrack these crucial conversations.”

The California State University Institute for Palliative Care in conjunction with the County of San Diego Health and Human Services Agency and Aging & Independence Services, and Caregiver Coalition of San Diego are making the Caregiver’s Handbook available at no charge.



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